Ask the expert

Family-members, a Crucial Resource


        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

If you have children, you likely identify yourself first and foremost as a parent. If you are a brother or sister it is important to enjoy being part of your family.

Being a family-member is an all‐consuming, extremely tiring, always exciting, tremendously stressful, potentially thankless but incredibly rewarding job. 

Being a family-member of a child with a number of medical and/or developmental complications;  there are additional responsibilities, stresses and rewards.
 
But it does also put's a burden on yourself, your ambitions.


We currently have no questions on this topic, maybe if there are more topics on this page scroll down...

Do you have a question you would like to ask?

Ask a Question

Do You urgently need help? Contact the CdLS Foundation USA, Our Staff!

Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.